Friday, 26 February 2010

Being lazy is an art you have to perfect.

I hate Fridays. Or, more or less, I hate having to go to work on Fridays. I've managed to pretty much skip this dealio for the past two weeks on account that I still feel fairly shitty (from lungs, infection, whatever. I don't even know what exactly, so you could just take your pick and you're probably right.) I made the fucking stupid mistake of saying 'I hope I stay well before IVs in two weeks.' Now this, my lovelies, is exactly the thing you're not meant to say if you don't want to jinx yourself. Of course, me being me, I said it and less than 24 hours later I felt like I'd been hit by a truck and then jumped on by several small (but evil) children. I took some co-codamol b/c the lungular regions were being annoying and hurting, and waited, like the ever patient person I am, for what felt like days (It was probably about 40 mins) for it to kick in. And when it finally did, I was about half conscious and probably slowly loosing the ability to type anything that made sense.
When I finally did sleep, I felt like I'd broken a rib in my right side. No idea what this was from but it woke me up from hurting, at about 3am or so. I just decided to tough it up and go back to sleep b/c I wasn't conscious enough to bother with more painkillers. And if I had bothered to get some, I'd probably would have woken the entire house b/c I always forget that the second to last stair creaks really loudly (I can't hear it myself but you can pretty much feel how loud it is when you step on it). That, and the pretty obvious fact that I'd most likely knock stuff over or break something. It's what I do.

I'm kind of at a loss of what to do. My week sort of moves towards Fridays, when I work, and then Saturdays for college. I'm considering quitting my job b/c I just don't have the energy to do everything. I mean, fuck sake, a couple of weeks ago I was carrying one of those stupid hoovers at work, and my co worker pointed out I was breathing a bit weird and asked me if I had an inhaler. I had to explain that CF isn't like asthma and there's no inhaler I can take to help. It was basically b/c I'd been walking up a hill (which wasn't even steep, and I'd only been walking about 100ft or so) and carrying that stupid thing. But even so, I still had to sit and catch my breath for ages after. So yeah, quitting that job and getting a different job where I'm not walking about or carrying things like a total pack goat all day, seems like a totally wise idea. Apart from the thing where no one wants to hire me b/c I look like a 14 year old.

Right. I'm off to be very unproductive and probably sit and watch tv, perfecting the art of being lazy. It's a real skill.

Thursday, 25 February 2010

Hospital folder held hostage. Please return shredded or alive.

I've got the joy of IVs in a couple of weeks. Which means I'll have made it an entire 7 weeks since finishing my last set of IVs (Unless everything gets shot to shit and I need them before that two weeks. Note to lungs: Don't. You. Fucking. Dare) I'm not entirely sure which meds I'll be getting. Probably Ceft and Colo, again. I did point out to my Dr that he has to find out what else I can have b/c I'm sick of having IVs that are less and less effective. These IVs will be for 3 weeks. Wonderful(!). I've never had a planned 3 week course that I'm aware of. It's usually, see how I am after two weeks and then phone up the hosp to ask (Uh.. tell) about a 3rd week. I have a horrible suspicion that 3 weeks are going to end up as my normal course of IVs. Ehh... As long as they work, I'm not that fussed.

Besides, when you think of it, IVs aren't that crappy as long as they do work. I get to do them at home so I still have my freedom with them. My weight and my lung function both went back up (Yay for my normal lung function, but this also crapped on my 'Cipro doesn't work, don't give it to me again unless you want me to attack you with a monkey wrench' thing. I did tell them how crappy I was feeling last week. I'm not entirely sure anyone believed that this was either caused by cipro or the fact that it just doesn't work on me, but either way, I'm reallllly not having that again willingly.) Whilst acknowledging my weight and LF increase, my Dr pointed out my cough was still pretty bad. And said 'Well what do you want now?' Which roughly translates as 'Nothing works on your fecking lungs any more!'. So IVs it is. The only annoying thing is the waking up early for morning doses anyway.

Well... that, and my vast amount of injuries from various needles and glass vials. Any offers to do this for me?!

All in all, clinic was uneventful as ever. I did have my hosp folder repeatedly ripped out my hands whenever I managed to get a hold of it. They said I have to write a letter (and they didn't specify who to) if I want to read it. It takes ridiculous amounts of restraint not to tell them to fuck off, b/c they already get to read my file and I want to know what is in it. I don't see the problem, b/c I already know the majority of it. And seeing as it's my file, it shouldn't exactly be full of stuff they either haven't or won't tell me about, right? I told the nurse that I'm tempted to just take the folder and leg it. He said he'd catch me within 20 mins. I should just challenge him to a drip stand race, winner takes all.

B/c, there is a limit to how much you can argue with the hosp staff. After all, they're the ones with the drugs.

Tuesday, 23 February 2010

Realisation - it hits you like a truck.

I just realised something recently.

What if I do get on the college course?

For now, it seems like a pretty big 'if' judging on how slow its going. But whilst I still haven't had an offer yet, I haven't been declined either. What I realised, is that this whole thing is resting on the decision. And I have no idea what comes next. If I get on the course, what do I do? Where do I start? I haven't thought this through at all. I figured, I'd live at home and get to college everyday when I needed to. I didn't think this through, b/c I can't drive, trying to get a lift every morning to get to college before 9am from my Dad would be stupid, b/c the course is two years and if I got a lift to college, he'd still have to get back home which means basically, double the journey (I've checked the timetable for the current first year foundation degree, and its every fucking weekday starting at 9am) I can't take the bus b/c the schedule is royally fucked and unless I fancy getting up at the crack of dawn, there's no way I'd fathom the buses b/c that involves switching buses at central station or somewhere else. And, urgh, I have no idea.

I'm gonna have to learn to drive.

Fuck.

I've been procrastinating on that b/c I find it hard enough to listen to someone when I'm in the passenger seat - how in the hell would I manage to drive and pay attention to the instructor? I know you can get instructors who teach deaf people. I hate considering myself as deaf but what else am I? There's no real category for 'CF fucked my hearing thankyouverymuch'. I'm clumsy enough just sitting down in the house, what the hell am I gonna be like behind the wheel of a car?

It's either that, or live on campus. I've got serious misgivings about that. And I'd probably have to drive anyway to be able to get places. As much as I hate the fact that I'd miss out on a lot by living at home, not really being able to stay out till 3am with friends on the night before a crack of dawn lecture, or being able to really enjoy freshers week, there's not much I can do about that. I wouldn't bother doing the the whole clubbing thing. I've been in clubs before and had to leave b/c I can't stand how loud the music gets and I can't catch my breath either.

I really need to start thinking things through.

Saturday, 20 February 2010

Incomprehensible babbling.

I have nothing constructive to say right now. I just felt like writing a blog.

Meh *shrugs*

Oh, and Macs hate me. College proved this. I can't seem to make them co-operate most of the time. I asked my tutor, after my second failed log in (this time, instead of just logging me out, it shut the computer down entirely) if I could drop it off a bridge. He laughed. He didn't think I was serious.

I did get pretty bored and started to photoshop some of my photos just for the pure hell of it, and take utterly random photos. Let me tell you this - unless you're in the studio, the photography dept has very few things worth taking photos of. I'm just glad I'm feeling relatively better now (funnily enough, without the aid of Cipro) so I was able to get to college, unlike Friday, where I failed at being at work - 30 mins into my shift my boss sent me home, saying 'it's pretty obvious you're not well enough to work today'. Admittedly, I should have realised this at home. But my brain doesn't seem to comprehend the words 'You feel like crap, stay at home'.

So, as I was saying. Incomprehensible babbling for no reason at all.

Thursday, 18 February 2010

De ja vu all over again.

Oh fuck off already!

I'm tired, and grumpy and bitchy b/c of it. And really short of breath with minimal energy. I decided to have an enshake the other day. And I always put it in this bottle thing to shake rather than stir like hell, as it's easier. And I got exhausted pretty much as soon as I picked the damn thing up. I had to get my dad to shake the drink up for me instead whilst I stood there pathetically, feeling like shit and contemplated dying all over the kitchen floor to demonstrate what a dramatic child I am.

I keep wondering why these IVs wore off as quickly as they did this time. It's similar, but also different to last year. My first IVs of last year made me feel like death b/c Mero decided to be a total bastard to me and pretty much render me comatose for a couple of days. Or at least that's how I remember feeling like. I remember sleeping for about a day and a half and waking up starving. Anyway. My point is, almost right after these IVs I needed MORE IVs consisting of more competent abx and thus making me decide that I'll probably never touch mero again without a barge pole. It brings me back to now, where I'm 4 weeks out of my last dose of IVs and wondering who the hell fucked off with my feeling good-ness. I feel like I need IVs again. I probably won't get them at this point. But it doesn't magically make me feel better if I'm told to wait.

It just feels like 2009 all over again, where IVs are being total shits and not working for me much. I WILL be pissed if the same thing happens, where basically no IVs all year seem to get me back to where I'd prefer.

Every time I cough its like every breath has been knocked out of me. I feel like I'm at a low point. But I'm not, not really. Not with all this progressive shit CF likes to do. For all I know, this could be my new normal. I'm tired all the time.

It'd be much better if they could find more meds which would tackle whatever is causing the problems (I'm guessing Pseudo. It always was an attention seeking little bitch). The meds they know that my pseudo is sensitive to are:

Ceftazadime - Which I've had as one abx in every dose of IVs probably since I was 6
Tobramycin - My Dr is reluctant to give me this to prevent 'more hearing loss'. Which I agree with, but also reply with 'Is that even possible?'
Cipro - Not fucking likely. I'm pretty sure I'm resistant now.
Meropenem - Why I'd want a repeat of last time is beyond me. So... maybe not.
Colistin - Which I now have as the second abx in all my IVs since stopping Tobra.

There. So, I have ceft and colistin every IVs. I really, really want these to keep working for me, as I don't have a lot of choice left. Unless you'd like to eradicate my Pseudo entirely for me?

Even despite the rubbishness, I still got these photos. I like them. It's from my bedroom window, and seeing as I pretty much didn't leave my room all day on Weds, it wasn't exactly a hard missed opportunity. All I had to do was pick up my camera which was about a foot away. And clickclickclick.




And finally, not forgetting the hot chocolate which I had. Seriously makes everything better. And yeah, that's a 'Lost' mug. I'm erm... slightly addicted to the show. Please excuse the fact I look like utter crap here, b/c I couldn't care less.

Monday, 15 February 2010

And the damn cough just never lets up.

Well well well.

I'm almost finished Cipro and I don't feel at all different. In fact, half way through the course, I've had at least three people ask me, more than once, if I'm ok b/c I don't look well.

Faaaaaaaaaantastic.

My 6th form tutor would ask me this a lot. The funny thing is, she'd think I looked ok when I felt like hell, and when I was ok, she'd say I looked ill. Warped.

On Sunday night, I barely slept at all. I mean, I cough a lot in the first place, and I'm obviously used to it b/c I generally sleep through it (Sorry poor fucks who can hear me! I've been known to wake people up a lot. In fact, my Mum usually tells me when I've been coughing all night b/c she's had to try and sleep through it. My family take the piss by having excellent hearing too). Anyway. So, on Sunday night, I kept getting woken up by my own incessant coughing. Every. 10. minutes. Which was pissing me off, a lot. By 4am, I'd already woken up and tried to get back to sleep more than several times, and I was starting to get one of those killer coughing headaches, closely accompanied by the sore throat from hell. Plus, I'd been trying to sleep since about 12.30am, which may be slightly early for me, but I'd been awake really early the day before so we could go to Chinese New Year.

People appear to be in denial and keep saying that Cipro has helped. Um, no it hasn't. I pointed out I wasn't, in fact, coughing this much before Cipro walked on the scene. I also took the piss by quoting myself from two weeks ago, where I repeatedly said to anyone who would listen 'Cipro doesn't work, and it hasn't worked adequately for me for about 2 years'.

I'm back at hospital for another appt near the end of Feb. And I'll probably still be coughing loads unless it decides to bugger off on its own. Which never happens, but I can still hope, right? What'll happen, is my Dr will point out I'm still coughing a lot, and Cipro didn't do it's job properly (You think?!) Then he'll say it's still too early for IVs seeing as my last dose finished 5 weeks ago (I've only ever had IVs again one month after finishing the last dose once before. And I really bloody needed them that time). So, I'll be sent off home on my merry way to suffer this lovely, flattering cough forever more.

I'm not sure what my LF will be. I still feel the same as before starting Cipro, but the bastard tablet has a habit of temporarily increasing my lung function, so it doesn't reflect on how I feel at the time. Even though I finish Cipro a week before the appt, if my LF has increased, I won't seem, medically, as ill as I feel I guess. What I am worried about is my weight. I don't eat much in the first place whilst on Cipro, but with all the extra coughing, I'm terrified I've lost weight again. It's really pissing me off. I don't know if I've mentioned this before, but I weighed myself before and after xmas dinner. And I fucking lost weight AFTER it. I don't know exactly how I managed to loose 3lbs after eating enough to satisfy a small army, but I've always been weird that way.

Oh well. All I know is at least I'll not be ill enough to be thrown into hospital completely for IVs. I'm not complaining. It's boring as fuck in there. But what does bother me, is that I haven't recently had staying into hospital even suggested in the past, like when I lost 20% of my normal lung function, lost weight, had no energy at all and generally looked (and felt) like death. I couldn't even finish the damn lung function tests. And I just got IVs and sent home. What didn't help was me running myself into the ground at school, but that's just the way I am. I need someone to tell me to stop. And no one did. So I guess, it's always in the back of my mind that I'll end up really ill one time and still sent off to skip home with IVs, rather than being stuck in hospital to get better (cause, there's nothing else to do).

Meh. I got bored again and took more pics. I believe the term is 'Cam Whore'. Yeah.









Saturday, 13 February 2010

Silence is deafening.

I can't think of anything to write. Or... do, at all. It's weird. A few times, I've been doing nothing, literally, nothing, and I've had to shake myself to snap back into reality. It's freaky, definitely. Very spaced out.

It's quiet, everywhere. I don't see people much, or talk to anyone much anymore. I avoid talking much to people in person these days, as full blown conversations just end with me smiling and nodding, and wondering what the hell they've been talking about the whole time. It's near impossible to lip read people who mumble too. College reflects this. People talk, I usually stay quiet and try to listen. A lot of the time me and friends just write notes to each other b/c it's easier that way.

I don't really know what I'm getting at here. I just know that I hate being in the house on my own all the time, no one really to talk to. The only time I can honestly say I'm happy on my own is when I'm out the house taking pictures. Unfortunately the weather likes to have different ideas to this. So at the moment I can't go to the one place where I've been wanting to go for a while. It's in Newcastle. And the place is generally deserted. But it'll definitely result in some good photos I hope. It's kind of the only time when I know who I am right now.

Ah. Sorry for the whole 'woe is me' blog. Tomorrow will be brighter.

Wednesday, 10 February 2010

Tachycardia.

As I write this my HR is currently 149 bmp. I seriously have no idea what's causing it - all I'm doing is sitting here watching a movie (For those nosey people, it's just John Tucker Must Die). But really. Maybe it's cause I couldn't catch my breath. Breathing really harsh and shallow is hardly a heart rates best friend. I could basically hear my HR. You'd think my hearts trying to break free at this rate.

I just checked it again and now it says 105bmp. Getting back to normal now, then. Down we go back to my normal 80 -or-so bmp.

Nothing else to say really. Just fancied freaking out a bit.

Tuesday, 9 February 2010

Insomnia induced quizzing.

Do you write notes on your hand?
All the time

Think a lot before you fall asleep?
Kinda depends on how the day went

Have you ever worn the opposite sex's clothing?
Yeah, loads

What are you doing besides this?
Procrastinating. I have an essay thing to write.

Will you be up before 7 AM tomorrow?
Oh god no. Why would I even attempt that?

What time did you go to bed last night?
5am ish

Have you ever liked someone older than you?
Yeah, generally b/c younger guys are immature as fuck

Does anyone regularly tell you they love you?
Yeah

When was the last time a member of the opposite sex hugged you?
Round about the time I last had a social life

Would you rather it be sunny or rain?
Sunny. I can't take pics in the rain, it'd spaz my camera

Who knows you better than you know yourself?
No one. I don't think there's anyone I've told every single thing to.

This time last year, can you remember who you liked?
Ha, yeah. Actually, he wasn't that bad.

Think back to the last person you kissed, how many times have you cried in front of them?
I never did.

Are you jealous of someone right now?
In general, I'm jealous of a few things people have, not necessarily jealous of one particular person

Will your next kiss be a mistake?
Lol. hope not

Have you ever kissed anyone whose name started with D?
Nope

Have you ever kissed anyone whose name started with S?
Yeah. Idk if it was a wise choice. But meh.

Connection between you and the last person who text messaged you?
College friends

Does it bother you when someone lies to you?
Yeah. In person, I can sometimes tell when ppl are lying. And it drives me mad.

Who do you feel most comfortable talking about anything to?
Hmm. Probably Steph. She knows me the most. And I can't lie to her.

Which one of your classes goes by the slowest?
I have one class, but it depends what we're doing. If its irrelevant shit, then it takes forever.

The last time you cursed at someone, why were you so mad at them?
I swear constantly, not just when I'm mad. But last time I was pissed at someone was cuz I just had a short fuse that day and very little patience for what he was trying to help me with

Robert Pattinson vs. Taylor Lautner, who's hotter ; )?
Who the fuck is that second person? As for the first one, I'm in the small minority who couldn't care less

How many times did you clean out your text inbox today?
I didn't. But I went through loads of old texts last night. It was weird reading them b/c I'm not so close with some of those ppl anymore

What is more annoying, people who take forever to reply to texts or when they only say 'K'?
Both. Texts that just say 'OK' or similar are really annoying tho. Especially if you've just written them a freakin novel.

What was the last thing you got in trouble for doing in school?
School? That's a while back. But I'd get told off by Blighty for either eating by the computers or neglecting to do coursework.

Your ex is driving next to you, what do you do?
Well, that would be awkward.

When was the last time you wanted to punch someone in the face?
Hm Saturday. Damn tutor. And hell, I'm not the only one.

If you had to sleep with one of your teachers who would it be?
Oh gross! None of my tutors are fit. Some of the students on the other hand...

Favorite pop tart flavor?
Don't shoot me when I say I've never had one.

Last restaurant you went to?
UNOs. Ha, that was fun.

Do you like your name?
Yeah. I know people who like it better than me.

Did your last kiss mean anything?
No not really, it was more of a 'in the moment' thing.

How many people do you trust one hundred percent?
There's one or two people I'd trust with my life.

Have you told anybody you loved them today and meant it?
I haven't said that today. In fact, I rarely say it.

Whose hand did you last hold?
In a 'couple' sense or in a 'grab their hand and run like kids' way? Probably Simon for the first, the second would be when I last saw people. I think it was Julie; we were skipping :)

What would you do if you dropped your phone in a puddle?
Be pissed.

Do you know any of your neighbors?
Yeah. I used to be good friends with some of them, and I went out with one of them.

List three things near you:
Phone, camera, laptop (My life)

Do you like it when people play with your hair?
Yeah

Where is the person who has your heart?
No one does

Do you hate it when people call/text you when you're sleeping?
Nah I don't mind. I like waking up to texts

Have you ever felt like you literally needed someone?
Yeah, when you feel helpless and you need that one person who fixes it all.

If your ex was in trouble and you were the only one that could help him/her, would you?
Yeah. If someone asks for help I try my best to help them

Your bf/gf cheats on you. What do you do?
Walk away. I don't want anything to do with people like that.

This time last last year were you happier then now?
No I think I'm happier now. I've been told I seem so too.

Do you spend more time on myspace or facebook?
Crackbook.

Do you think you're wasting your time on the person you like?
Ha, erm...

The last person you had a thing with comes up to you and says "I'm sorry..."
I'd ask why he's sorry. And then probably say it doesn't matter.

Monday, 8 February 2010

Why you shouldn't press buttons.

I got attacked by a shower.

Seriously.

At work, I was minding my own, messing about with the buttons that switch the shower on in one of the cottages (It was a sort of disabled bathroom, so it was effectively a giant shower. I wasn't sitting in the tub like a complete idiot). This was clearly where I started to go wrong, but I carried on regardless. So I'm turning the buttons (there were two of them) and as the shower wasn't switching on, I continued to twist it. On, off, on, off. There were two different shower heads too, so I had no idea which one would switch on, so I was also satisfying my own curiosity. And continued to switch the buttons on and off.

Can you see where I'm going with this?

I twisted both one way, and there was this sudden WOOSH of water, but it quickly stopped. Not before it soaked my leg, but it did stop, almost. It kept dripping in a steady stream and I was twisting both buttons like mad to stop it, before I really did drench myself. This was where I went wrong a second time.

I twisted both the buttons to the right, and the other fucken shower head decided to join in on the fun. This one soaked my arms and my right leg again, and also threatened to soak my work top. I bashed the buttons again and it all switched off. Then I legged it before I was tempted to turn the damn things again, as next time would probably entirely soak me, and it was a cold day. Plus, the fact I have HAs. Breaking them wouldn't sit well with me, and somehow I don't think my Dr would buy the 'I was just fucking about with the shower buttons and it soaked me, thus breaking my HAs. Can I get new ones please' as an excuse.

Friday, 5 February 2010

Cipro is [never] the answer.

I'm having a tantrum at Cipro. Bare with me.

I had to go up to clinic on Weds, seeing as my Mum had phoned up saying I needed some Cipro. So we went in after my bone scan at the Freeman (Where, I got told not to cough during the scan by the tech. I just looked at her and said 'Seriously?!' The scan took about 5 minutes, but it felt so much longer, as the second someone says 'Don't cough', it's all you can think of doing. I also had the dignifying task of wearing a hospital gown during that scan. Sexy(!)) Anyway, so, clinic. I went in and did the routine stuff, weight and PFTs. My weight went up but my LF is down. I wasn't sure of how much they'd exactly gone down till I could have a look at all the old numbers. I'm now at 61%, lowest I've actually been since August 2008. Whoops. Not that 61% isn't a bad number. I still think it's pretty good. I wouldn't mind going back up though.

I talked to the physio and mentioned the 91% sats after 5 minutes on the wii fit deal. And now I've got an exercise test. Joy. It's for 17th March, at 10am. When I saw that time, I said 'Are you trying to kill me woman?!' Which made her laugh. Then I pointed out I didn't actually get up till 12 that day. Her look was priceless. She talked about the how if your sats drop really low during that test, you'd have to talk about getting O2 for exercise, at least, or something like that. Although I'm not there yet, thankfully. Plus, I'm pretty convinced that the 91% reading was just that day being rubbish. I'll get back to you on that. I need to try that again, cept I never really bother seeing as the wii fit is downstairs and my sats thing sits happily in my room. It's a tiny box, hardly much effort to bring it down. The effort is mainly bothering to walk up the stairs.

(I'm lazy.)

After the physio left and my Doc came in, it pretty much ended with 'Yeah you need Cipro.' Argh. It's only cause it's been two weeks since my last IVs, so it's too soon for another round. So, it's Cipro, or you're fucked. I can't have nothing, not with a 10% drop in my lung function. Bare in mind, the last LF test was before IVs, and this one is after. I'm slightly pissed at the fact the IVs seemed to, well... not work. Again. I was thinking of making 2009 a complete write off if 2010 got it's arse in gear.

It apparently didn't.

I really hate the fact that I'm on Cipro though. Every single time I've been on it, I've just lost my appetite, which really pisses me off. I said, at least 20 times, that it doesn't work anymore. No one believes me, which is silly b/c I would know. I also have a hard time convincing anyone about the appetite thing. My parents keep saying 'It's all in your head.' Which just ends in an argument and me yelling a lot. I just don't like people thinking they know better, when they don't. They're not the ones who have to choke on the effing size of Cipro, or have to sit and be annoyed at the stupid rules about it, like not being able to have things with milk at the same time. Which fucks up breakfast if I take it before, or I forget to take it if I have breakfast first.

It also jeopardises the chance to drink copious amounts of tea, at least at morning and night. Bane of my life, that. I think drinking 6 cups of tea a day is totally reasonable. Bree has often beat me at this number though. She loves it more than I do (Btw, how many tea convos have we had on msn? I'm actually loosing count).

I also got a paper cut off my hospital folder. I guess that serves me right for being nosy and going through it.

Oh and plus, with the weight increase, I was looking at the chart thing that converts the Kg into stones and lbs. I'm 6st 12lb (43.5kg) at the moment, and looking at the chart, and the following happened:

Me: 'The dietitian probably wants me at something like 8 stone though *checks chart* Ah. That's about another 9kg. What weights 9kg? A small child?'
Dad: 'Yeah, sounds about right'
Me: 'That settles it, I have to eat a small child. Well where can I find me one of those?'

Yep, I'm afraid that's a very average conversation with me. Pity the people who speak to me.

Hmm. Maybe Cipro wasn't the worst of ideas - 20 mins of exercise and my sats are 85 and my HR is 170 *Sits down* actually I hit the 85 after 10 push ups, and I beat the wii fit trainer b/c I'm awesome. My little arms almost snapped after that. Basically, Cipro is either going to make feel better, or do nothing.

But it won't make me worse, so why not.

Tuesday, 2 February 2010

Prescriptions and pictures.

I can't be bothered to think up an inventive title. It took me forever to think of what to write for this blog anyway.

So my Mum phoned up the Dr asking to put me on Cipro. The thing that clinched her decision to phone up was cause my sats dropped to 91% after 5 minutes on the wii fit. I was getting exhausted, fast. It's ridiculous. She also said that we're gonna have to think about suggesting having 3 weeks of IVs instead of 2 weeks from now, her point being that every single round of IVs in the last year have left me needing Cipro afterwards, and scheduling the next IVs not long after. We're just waiting for the Dr to call back, as we got his secretary on the phone.

I'm trying to see the bright side here. But Cipro does nothing for me. At least, I've never noticed it to. The only thing is the temporary LF increase which I can enjoy. Next time I go on IVs, if the Dr agrees with the 3 week thing, it'll just mean I'll feel much better afterwards, which will definitely be welcome. Cause, I just don't have the time or the patience to deal with lungs that refuse to co-operate after all the drugs we throw at them. Hell, even being totally compliant doesn't agree with them. Although I know that if I wasn't compliant I'd be really screwed, so I'm still gonna keep it up. When I wasn't compliant, I saw doing all my meds as such a chore, but now it's just part of my day. So it's simple and easier to keep it up.

Oh, and I got my prescriptions picked up today. A bit more than I realised it would be... haha. I'd basically ran out of everything, so I just thought 'Sod it' and ticked everything. Well, almost everything. I didn't bother getting more colomycin or Tobi nebs as I've still got enough for now.

But still:

Hmmm I like putting pics on my blog. What else... *rummages*







And lastly, I miss my laptop. I sent it down to the Acer repair centre which inconveniently happens to be in Plymouth (Which, I actually found I've been pronouncing wrong for the first 18 1/2 years of my life). And Plymouth happens to be about 10 hours away. There was something wrong with the screen I think. An annoying yellow line would appear now and again, and after a few days, a blue and a pink line decided to join the party. It was starting to fucking look like a pregnancy test result. After a few weeks of this, I got sick of it and decided it needs fixed. And hey, my laptop is only a few months old, so my repairs are still free.

However, if I ever choose to buy myself a laptop again, there's not a force strong enough that would make me choose Acer. What possessed me to think it'd be a good choice is beyond me. But I'm not a techy person when it comes to laptop specs (or other techy stuff, but that's a whole nother story). I'm currently using my Mum's laptop. It's a few years old, weighs about 2 stone, and when you're typing it has the habit of jumping back into the middle of your sentence, deleting everything you've written or switching windows completely, so you can imagine how enjoyable it was to even just write this blog. In the past week, you wouldn't believe how many times a fucked up sentence came along on msn, cause the cursor thing jumped around whilst I was typing. I look like I've decided to close my eyes and just mash away at the keyboard. In fairness, that would probably make my typing more legible.

I also keep getting static shocks on my wrists, as the edge of the laptop is metal, sort of looks like a giant speaker across the edge of it. Anyway. This is messed up too and now my wrists are starting to sting a bit. I hope they send my laptop back soon. It's a simple fix, so it shouldn't take long. I have no Photoshop, no Picasa, no webcam, I won't even dare to put all my photos on here in case it has a total spaz and freezes. The only thing I have noticed is that this XP starts up way faster than Vista.

But then again, I have my Windows 7 driver CD sitting patiently, awaiting the arrival of the much more friendly laptop which doesn't wish to attempt to electrocute me when I use it (Or take the plug out the wall either).

My annual ridiculous hospital adventure

I find it annoying I only ever blog when something like an admission happens, and even more annoyingly, thats why I'm blogging this ti...