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Showing posts from September, 2009

Because staying up late is just that cool.

So, last night I was on the computer till about 2am. When I realised the time I thought I should probably go to sleep - not that I have to be anywhere the next day, it's just that I'd rather have my breakfast at some point the next day before you can consider it lunch. So, I logged off msn, switched off the laptop, put it on my desk, climbed back into the comfy space in my bed. And picked up my book. Which I began to read for a further 30 mins.

I just don't learn, do I?

I didn't manage to sleep until about 3am, which was starting to get annoying, but I did eventually drop off and woke up at 10am this morning, which isn't too shabby.

As much as I love the CF forums and such, I just can't seem to get over the feeling of not really belonging there. Why? God knows. But it's always when people are having a laugh and creating a ridiculously long and wonderful to read, and not to mention, bordering on physio b/c of how much it makes me laugh, topic, I just don't …

Rambles.

I'm glad I've still got time for the Cipro to get to work - whilst I know Cipro does nothing for the cold itself, the cold seems to stop the Cipro actually working at all, at least until I'm better. Which is why I was glad that if I had to get a cold, that it was when I started Cipro, rather than just finishing it - there's always a feeling of pointless-ness when you get a cold near the end of a dose of antibiotics, as a cold usually renders them pretty useless. At least, it does for me.
Anyhoo, there was something I wanted to mention that I don't think I've mentioned properly before. Organ donation. Its always been on my mind since I found out about the whole CF = possibility of needing a tx, but I've never thought about who, out of people I know, are actually signed up. It's not the easiest thing to bring up, b/c most times organ donation is what happens when you die, to put it bluntly. People don't like thinking about the deed itself just as much…

Typical.

Aaaaaaaaaaaaaaand I have a cold.

Fucking great.

I can thank my little sister for this. My throat hurts SO much right now, and at first, I thought it was maybe me adjusting to the hypertonic saline. But it's not. It's just a cold. A bright side is that I've only just started my 2 weeks of Cipro - the cold should be long gone soon and my Cipro can get to work. It never seems to work well when I have a cold. I've learnt that antibiotics of any kind + a cold = no chance in hell of getting better. At least, if you get a cold when your antibiotics are just finishing.

I'm pretty sure I had a cold last time I was on Cipro. B/c I haven't been on it for ages, and the last time I went on it, it never worked. Not only that, but I completely lost my appetite. Thankfully that isn't happening this time - I'm always starving right now. In fact, more than I have been, which is good, could I be bothered to move and go to the kitchen. I'm kind of hungry like I was when I…

And the props go to the hypertonics.

Hypertonic saline sometimes seems like nothing short of a miracle. I started it on Wednesday night b/c I had clinic on Wednesday, and suggested to the Dr I try hypertonic saline again, as I only tried it once, probably when I was about 10, and didn't feel any effects then (although I should really have given it more than a couple of days). Basically, I wanted to give it another bash, just in case. It's all b/c mid-August I went to Scotland for the day (to a seaside town called PortPatrick) and the sea air had a massive effect on my lungs. So I wanted to try hypertonic saline again. Anything to try and get my lung function back up. (For those who are wondering what the hell hypertonic saline is, and why it compares to sea air, its basically just salty water, inhaled through a nebuliser, so essentially, salty steam.)

My Dr immediately agreed with me trying the HTS, as when I get a bright idea like this, for some reason, it seems to really work on me (Last year, I suggested ditch…

Tattooed lady.

Image
I've been thinking a lot about the tattoo I want (Breathe on the back of my neck). I've even started to draw it. Admittedly, they aren't the best I guess, but I thought I'd take a picture or two of what I have drawn. I'm no where near actually getting a tattoo this second, but I will do it. I know it will! It's on my list dammit, it has to be done sooner or later.

For some reason, the idea of this tattoo (or rather what it says) means a lot to me. It's not really a negative reminder of CF, its more or less a word that has inspired me to want to increase my lung function, and its also the word that makes me feel ok with the prospect of lung transplant (even though I'm no where near this stage, I know that when it does come around, I'll have no doubts because all I want is to be able to breathe freely). I know that if people who don't know me/know I have CF would be confused on why I want the word 'Breathe' tattooed onto myself, but to be h…

Welcome to boredom. Leave your shoes at the door.

I swear I have not done a thing all week. Aside from work on Fridays although it ain't exactly the most thrilling thing, so we can just skip that part. Although I have to admit, making the beds in each of the holiday cottages is one hell of a physio work out.

It's taking forever and a day for my cheque for my camera to arrive. I suppose its the excitement of getting a brand new, (freaking awesome) DSLR that's making it seem to take so long. But they did say the check would be on its way near the end of Sept. So my Dad said he'll buy the camera and I can pay him pack when the check arrives. I like this idea because it means I get the camera sooner, and can start fathoming how it works before my course starts. If I ever get the start date. Obviously we would have gotten the camera already but it's a popular camera and every place is sold out. I've changed from the Nikon D60 to the Nikon D3000. Mainly as the shops were saying that the D60 is being 'phased out&…

The 7th circle of Hell: Pleurisy.

Oh pleurisy, won't you please leave me alone?

I don't think I've actually ever been free from it the second it took up residence in my right side. Granted, at the moment its seldom painful, and when it is, it's no where near as bad as it was at it's worst. When I was recovering from that time, it was probably weeks until I could breathe without pain, whether intense or just sheer irritating from the consistency of it. I took painkillers for a few weeks too, morning and night (the first week or so I think it was 4 times a day) and then stopped taking them in the morning because it was wasn't as bad as it was. At night it was pretty grim though. I was woken up several times every morning, from the pain, because I hadn't taken painkillers the night before.

Anyway, so I got well enough not to need painkillers. Yes, the pain was still there, but eventually it did dissipate almost completely. I remember waking up one morning and realising it didn't hurt to br…