Showing posts from February, 2009


Okey doke, as I'm a total sucker for being 'tagged' for certain posts *cough* Piper *cough* I'll let you in on some stats on me. Although if truth be told, half of what I'm about to say I've already repeated like 5 times. But who cares?!

1. My first name is Megan, my initials are M.A.C (Shut up).

2. I was diagnosed at 3 months old. Before I was diagnosed, I would apparently cry all the time and barely eat, which was probably because I wasn't getting enzymes, and everyone knows it ain't fun when you miss enzymes with a meal. Now imagine that for 3 months.

3. My birthday is in August, and this year I'll be 18 (and yet still refusing to act like an adult)

4. I've had 3 port-a-caths, all in my chest. My first one was when I was 11.

5. I have 6 lovely (!) CF related scars. I'm a human doodle.

6. I'm 5'1 and one of the smallest in my school year (but not THE smallest)

7. My parents noticed my hearing was decreasing when I was 9, but the Drs refus…

Days like this.

Oh. I'm a mixture of upset, confused, and damn right pissed off right now. And why? Cause I found out that after months of waiting, that the college I applied to have declined me. I don't know why, I'm convinced that it's because it said I'm deaf on my application, as I have the 'relevant A-Level' (art) that was required without having to do an extra year long course.

The art teachers keep trying to tell me that I should do this extra course, that it will 'prepare me for college', but right now, I couldn't care less. I don't want to wait another year doing other art stuff, I want to do photography. One art teacher said 'you'll get to continue with art, and maybe you'll decide you don't want to do photography any more' and I was left spluttering and trying not to slap her. This is the first time in my life I've actually made a proper decision about my future and shes trying to make me think that I should change my mind.…

I must be getting older.

You might have noticed that I've added something new to my blog. On the right hand side, I have a list of things to do. I don't know whether to put a time limit on it (I know it'll be impossible to do the 101 things in 1001 days, mainly as I cant think of 101 things yet, and as I don't have the time or anything else to do half those things in my list to complete it within 3 years) I don't want to call it 'Things to do before you die' as that sounds morbid. I'm thinking of calling it a 'Things to do before I'm 30/40 or something like that (Screw the life expectancy of CF. I'm bloody completing this list. The statistics can wait). I'll keep adding to the list when I think of something good. I've got about 30 things on there now, and I've already ticked off a couple, which is a good start in my opinion.

After reading Piper's post, I started thinking about people who don't know much about CF until they meet me. (As far as I k…

The One with the Metaphorical Tunnel.

Oh for goodness sake, I'm already sick of my blog template again. I just want a really nice one that suits me, but I can't be bothered to fork out to pay for one made specially for me by people who make blog templates. Ho hum. Oh, and since writing that '25 things' post, I majorly needed cookie dough. So I made some, and ate it. At considerable speed.

Never stand between me and my cookie dough. If you read number 11 on that list, it indicates that I can be known to have a slight temper. Which is very easily justified depending on the circumstances.

I got my PEG out on Tuesday. The nurse still hadn't called up, so we called back up again. The woman went on and on about some sort of bollocks that could be very simply translated as 'Oh... but I can't be arsed to do it', so my mum took it out instead, as shes qualified for that kind of thing, seeing as she's a nurse, and knows all about PEGs and such. Anyway. I'm FREE!!! Its such a weird feeling. I&…

25 things.

25 things about me, cuz Jessica tagged me to!! What you're supposed to do is write 25 things about yourself, then tag 25 people to do it too. I don't even know 25 people though the eternal blogosphere, so I'm thinking, you read it, you're tagged. Mainly because whenever I do tag people to do things, they've usually been tagged already. I told you I don't know many people!! Right, fasten your seat belts, we're going in...
I am so unbelievably fussy about food, that I have no favourite meal. As crumpets don’t actually count as a proper meal!!
I am a self confessed ‘lost’ addict. No matter how confusing and time jumpy it gets, once you’re hooked, it’s pretty damn hard not to watch the next one.
I found out about the CF life expectancy when I was 14, from someone who was supposed to be a friend. And the worst thing was, she handed these pages of ‘research’ (three printouts from a site about CF) to me with a massive grin on her face. I’ve never forgiven her. And ne…

The waiting game.

Last week, Jenn passed away after a sudden decline. I'd only been reading her blog for about a month, and never commented, even though I found that we're similar, in the fact that we've both suffered hearing loss from Tobramycin. Sucks, doesn't it. Its confusing when you miss someone you haven't met, or didn't really know. She was only 28. That’s not an age to die. And that is why I hate this disease.

Something I forgot to mention last post… my hospital file now has a big blue sticker on it that says ‘Infection control’ which apparently means that they have to check for MRSA during bloods and stuff, but also, according to the nurse, if I get ‘ill’, I have to go straight into hospital apparently, rather than just have IVs at home like I would usually. This is weird news for me, as no one had told me this before and I had MRSA back in November ish.

I hate hospitals, mainly as I have a super short attention span, get bored easily. And they never put me in a cubicl…

Mixed emotions.

Yey. I'm doing well apparently! My lung function was both up and down at my appointment yesterday. The first bit was up, and the second bit was down. I'll get back to you on that when I get the letter saying everything. I forget stuff so easily! On an even better note, and trust me, there are some mixed emotions about this one, I gained 2.6kgs! Which means that I can finally have my PEG tube out, which I've had for 6 years (hence mixed emotions -I'm so freakin' glad about getting rid of it, but its been there for 6 years! Plus it’s not the nicest feeling having that tube taken out. And the chance, well, really small chance, that I could need a stitch in it. Ahh!) Anyway, where was I? Right, so I've finally kept my weight up long enough to have the PEG taken out, Oh and the physio said that the rattle is most likely just a plug or something. Fun.

The physio also said that I should start going to the gym for exercise, as I honestly don't do much. I'll adm…

My day off.

So far things are going well. I'm not coughing as much as I normally would at this point sans IVs, although maybe just enough to suggest maybe going on cipro, when I have my appointment on Thursday. Also, I'm gonna stay in that Dr's room until that rattling re-appears, as it always disappears whenever I'm near a hospital. Today, I spent a large chunk of time rattling and attempting physio in a bid to get rid of the rattling (which I was clutching on straws at the hope it had actually decided to bugger off seeing as I hadn't rattled for about 2 days.) but all I accomplished was feeling too puffed out to cough more. And still rattling. I don't know what it wants from me.

Also, on Thursday, I'll be seeing if I've gained enough weight to have my PEG out. (No that's not me, the only way to put a picture of my PEG up is to put it directly on here. And frankly, I'm too much of a wuss to do it. Its not the most attractive thing to have in the middle of …