Yey. I'm doing well apparently! My lung function was both up and down at my appointment yesterday. The first bit was up, and the second bit was down. I'll get back to you on that when I get the letter saying everything. I forget stuff so easily! On an even better note, and trust me, there are some mixed emotions about this one, I gained 2.6kgs! Which means that I can finally have my PEG tube out, which I've had for 6 years (hence mixed emotions -I'm so freakin' glad about getting rid of it, but its been there for 6 years! Plus it’s not the nicest feeling having that tube taken out. And the chance, well, really small chance, that I could need a stitch in it. Ahh!) Anyway, where was I? Right, so I've finally kept my weight up long enough to have the PEG taken out, Oh and the physio said that the rattle is most likely just a plug or something. Fun.
The physio also said that I should start going to the gym for exercise, as I honestly don't do much. I'll admit that it’s a good idea, but I'm not keen on the price of gym membership. There really should be some reduced rate for CFers. It's not like we have much of a choice - going to the gym practically becomes religious when you're dedicated to improving your health.
I got started on cipro last night (my idea - I said I felt well enough not to need IVs, but I should have cipro as I'm coughing and it'll be like a top up for me, without resorting to IVs, as the Doc wants me to cut down on IVs to avoid future problems. Like what? More deafness?) These cipro tablets have freaking annoying rules though - not to be taken at the same time as milk. And I eat cereal in the morning. So obviously I forgot to take my tablet this morning and I got so annoyed with myself, as I’m at school and is a good 30 mins away from home. What annoyed me more than this was the fact that as my bus took its sweet time to pick me up, I could have ran home, got the cipro and gotten back to the bus stop before the bus had even gotten there.
Damn.
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First and last of 2018
Oh dear. I think this is a new record, one post for the entire year (Technically. I wrote on 1.1.18 but its likely I wrote it a few days bef...
3 comments:
I'm glad you had a good visit! Great Job on gaining weight:)
I'm also glad that you write what you feel. Don't worry...you have friends right here:) And you don't have to "hear" what we say:)
Anyways, I just wanted to say "Hello:)" I'll be praying for you.
M
Have you looked into getting hearing aids? When I belonged to another CF site a woman on there had lost almost all of her hearing from IVs and she got fitted for hearing aids. I would discuss it with your DR and see what they think. I don't think it would be a bad idea at all!!! if you can't hear anything then I can imagine how hard school is and college when you go!!!!!!
Hope the Cipro does the trick :)
65 Roses - yes you have lots of friends out here! And we are reading what you write and care about how you feel.
When you tagged me for the "One Lovely Blog" award, I was very sad and it lifted my spirits. I wish that we could say something to make you smile.
So this is the best that I can do at the moment:
Handle every stressful situation like a dog: Piss on it and walk away!
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