Thursday, 19 February 2009

I must be getting older.

You might have noticed that I've added something new to my blog. On the right hand side, I have a list of things to do. I don't know whether to put a time limit on it (I know it'll be impossible to do the 101 things in 1001 days, mainly as I cant think of 101 things yet, and as I don't have the time or anything else to do half those things in my list to complete it within 3 years) I don't want to call it 'Things to do before you die' as that sounds morbid. I'm thinking of calling it a 'Things to do before I'm 30/40 or something like that (Screw the life expectancy of CF. I'm bloody completing this list. The statistics can wait). I'll keep adding to the list when I think of something good. I've got about 30 things on there now, and I've already ticked off a couple, which is a good start in my opinion.

After reading Piper's post, I started thinking about people who don't know much about CF until they meet me. (As far as I know, I'm the only person in my school with CF. And there's about 1300 in our school.) Mainly its people like the teachers, although friends are included with this (when they don't know much about CF, but I feel like they deserve a few explanations, seeing as they politely chew back any questions about why I cough/am so small and such) I tell them a lot of things, answering the questions they've finally wanted the answers too, and then when the find out that I have to take almost 30 tablets a day, do physio, have nebulisers and inhalers, and constantly go to the hospital, usually to get stabbed with a needle, they say 'Wow, you're so brave' and yet, I don't feel brave. The things I do to stay healthy are all I've known, and can't imagine life back to when I never had to take tablets. Keeping CF at bay is part of my life, and always will be, so I don't consider it brave when I go through my daily routine. It is nice that they realise that CF isn't a walk in the park, and that they realise that sometimes I'm ill even though I try to hide it, but talking to others, explaining the reasons why I need IVs (by the way, top way to freak out someone, my port, with the tube in my neck) is never the same as talking to those with CF, who understand everything and have probably been through the same things. I should probably just cut this short and say I'm incredibly happy I started this blog, and started talking to other CFs.

I also wanted to gripe a little about Cipro. Honestly, I've been coughing with enough force to pop my eyes out of my head, my poor throat is all raw, and dammit, if Cipro doesn't get it's act together, I will get very, VERY grumpy.

Well... no more than usual.

2 comments:

Lil' Chris' Mom said...

YEA YOU GOT YOUR PEG OUT!!! I like your new blog look:) I like your list of things to do too;)
I CIPRO starts working soon.
M

Graciy said...

Hey my names Graciy and I'm 20 and I have been married to my husband for two years. He has CF. Needless to say we know how you feel. Until we started blogging we really didn't have anyone to talk to about all the CF stuff.

I know Josh doesn't feel brave but really he is. It's so hard to judge yourself when your not on the outside looking in.

Cipro is GAY Josh just got of it and it did nothing of notice. I hope you feel a bit better soon.

One of those things

Hemos. Nearly everyone with CF has probably been there at some point. Its just one of those 'things' that comes hand in hand with sh...