I had IVs in August to make sure that I was well enough for starting my new college course in Sept. Although logic in starting these IVs mid august when they only last for 2 weeks, is fucked, cause college doesn't start till 21st sept, and we all know how fast things go to shit the second you finish IVs.
I got a cold mid-IVs. Tres unimpressed. But by some miracle the cold disappeared a few days before IVs finished and I thought 'YES! Still a few days for IVs to potentially work'. Basically, the second I finished these IVs, the cold came back, and IVs were thus rendered useless. I was coughing worse than before and felt horrible. Literally had no energy or breath and when I have a cold, or feel crap in general, every single task seems 10x bigger than it actually is. So I started college feeling like shit and with all the work they threw at us I just felt like I wasn't coping. I kept saying 'I don't have time to be ill' and I was just generally frustrated at my lungs deciding to be little shits to me. We had my hosp appt moved forward a week, and I was straight back on IVs, for 3 weeks. So I spent 3 of my first 4 weeks at college trying to make sure that you couldn't see my port. Or rather, the tagaderm covering the gripper needle. Although unless I'm about to adopt some nun style up-to-the-neck get up, you're gonna be able to see it.
So I spent 3 weeks fully aware that people were generally looking south of my face, and not for the typical reason you'd expect blokes to be. I finally finished my 3 weeks of IVs and then a week later had a clinic appt. My weight and LF were identical to the previous results, which were taken just before I started IVs and felt like hell. Weird, considering now I felt better. Not 100%, but definitely way better than I would have been feeling sans IVs at this point if I'd never had them in the first place.
It was a fairly annoying appt where everyone stated the obvious. After 1 1/2 years with pleurisy I got an upgraded offer from paracetamol to codeine, but I refused it. I also refused to schedule my next IVs just yet, as the plan was to wait till my next appt in four weeks and see how I was doing then. I was fairly adamant to stay off IVs as long as possible as they just annoy me now, and they just don't work as much as they used to. If anything, they just stop me getting worse rather than get me any better.
So yeah, now I'm 1 1/2 weeks out of IVs.
I HAVE A FUCKING COLD!!!!!!
Gahhh, I might just start kicking small children that get in my eye line just to satisfy how pissed off I am about this. Add it to being on top of concussion *sigh*... break please?
Ah yeah, the concussion.
I apparently whacked my head on Tuesday (or thereabouts). Tues evening I had a headache and noticed a bump on the side of my head, with what must be a bugger of a bruise as I could barely even go near it.
The only weird thing is, I can't remember hitting my head. At all. I bump into stuff plenty but I think I'd remember this one. Plus, add this to the fact that I rarely ever bruise so for this to hurt this much, it must have been a proper whack.
By Weds I still had a headache, and had to go on two visits with college to the digitalab and the biscuit factory. Visits that were important as you had to write a 500 word report on each. I felt fairly spaced and wasn't really taking much in all day. My headache was getting progressively worse and I was starting to forget stuff - I had to go and pick up some negatives from Jessops, and I couldn't remember the words 'it's just negatives' when the woman asked me what size my prints were.
I managed to get home in one piece, just remembering my stop at the last minute as I took the bus. My headache was now trying to form it's own persona that probably had the power to bring down cities with pure mind power by now. And I started to get a temp and talk like a spaz. I generally talk too fast and trip over my words so people weren't noticing when I had to stop and think of what I was trying to say. I tried para two times to shift the temp and it never worked and never even expected it to touch this soul destroying headache. I managed to sleep off the temp and my headache was halved by Thurs so that was improvement, but it was still on/off all day. Added fun trippy dizzy moments continued till Thurs too. 3 day headache and I was ready to break out the mallet. I never bother with para for headaches, Ibu doesn't work and weirdly neither does codeine. So I just suffered rather than become a drug dispenser. Mad, maybe. But I don't like being high as a kite but still in pain.
Pretty sure my temp was from the cold which jumped onto centre stage on Thurs. And all the joy that comes with a cold. I woke up so many times throughout the night from my sore throat which has swollen up and is now restricting my breathing, so I realllllly hope it pisses off soon, cos every time I (pathetically) cough, it hurts, loads. My headache has almost gone so that's a plus.
At least I'm as caught up with my college work as I can be. Four 500 word reports written with concussion... maybe I should spell check.
Hemos. Nearly everyone with CF has probably been there at some point. Its just one of those 'things' that comes hand in hand with sh...
This country (or in most cases, the world), is pathetic about disabilities and those who have them. I can only speak from my own experiences...
A month ago, we got back from an amazing 9 days in Orlando, Florida. The first proper holiday we've been on in 4 years, saving up for so...
I find it annoying I only ever blog when something like an admission happens, and even more annoyingly, thats why I'm blogging this ti...