Saturday, 26 September 2009


I'm glad I've still got time for the Cipro to get to work - whilst I know Cipro does nothing for the cold itself, the cold seems to stop the Cipro actually working at all, at least until I'm better. Which is why I was glad that if I had to get a cold, that it was when I started Cipro, rather than just finishing it - there's always a feeling of pointless-ness when you get a cold near the end of a dose of antibiotics, as a cold usually renders them pretty useless. At least, it does for me.
Anyhoo, there was something I wanted to mention that I don't think I've mentioned properly before. Organ donation. Its always been on my mind since I found out about the whole CF = possibility of needing a tx, but I've never thought about who, out of people I know, are actually signed up. It's not the easiest thing to bring up, b/c most times organ donation is what happens when you die, to put it bluntly. People don't like thinking about the deed itself just as much as they don't spend their hours planning their own funeral, b/c one of the first things that many people link organ donation to is morbidity. What you should see it as, is an opportunity maybe to give someone the life they've never really had. Plus, surely its comforting on some level, for friends and family to know that you didn't die in vain, and that its one of the most selfless things you can possibly do in your life.

It was on my mind a lot whilst filling in the form for a provisional license. I've never been signed up as an organ donor before, as I suppose, many people with CF wonder if they've got anything worth giving. When I was 17, a letter came through the door saying 'Now you're 17, why not sign up to give blood.' My Mum told me that I probably shouldn't, given the fact that I probably loose pints via the hospital and could probably use the blood I've got. But organ donation is another matter, b/c you can't keep using something once you're floating away out of your body, or whatever happens then. The 'organ donation' section of the form is optional, obviously, but I knew I should tick something. I just don't feel right knowing there's a chance I could need a tx myself, but at the same time, refusing to be a donor should I ever choose to kick the bucket (not that I plan to obviously. I'll still be blogging away 150 years later, complaining of the taste of Cipro, as per usual.)

I thought I'd have to tick the separate boxes (You could say, for example, they could have everything bar maybe your eyes or pancreas or whatever you have an unnatural attachment to.) But then I realised that obviously they'd know not to use my lungs, or my liver (b/c of the shit-sheer amount of drugs we CFers take.) and anything else, say my kidneys, pancreas, heart and eyes, they test to make sure they're a-ok. So I ticked 'Any of my organs and tissue', although I doubt they'd want my skin/tissue either, as CFers are lucky enough to be salty as hell.

I asked a couple of friends if they were organ donors, or if they'd ticked the box when filling in their own provisional form. They said they'd left it blank. I don't understand why people are so against doing something that A, could save numerous lives and B, you wouldn't even notice b/c you're haunting the teacher that failed you out of a class in high school. Plus, they knit you back together after it all, so everyone else doesn't notice either. It's pretty much a win-win situation.

Aside from the six-foot-deep part, but that's inevitable.


Laura's medical journey said...

its good that you want people to donate organs. i know and you know it wouldnt be easy asking to do that.

i wish i could but with the condition i have im not able to give blood or donate organs.

i agree that it can help a lot of people.

MBNAD woman said...

With a bit of luck, you'll be around so long that gene therapy etc will have made you a desirable corpse in transplant terms ;-)

I've never understood why we would turn down the chance to help someone else, when, let's face it, we'll be beyond help ourselves.

Good for you. I copied your link for the UK organ transplant site.

Mad x

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