My Dr immediately agreed with me trying the HTS, as when I get a bright idea like this, for some reason, it seems to really work on me (Last year, I suggested ditching Tobra IVs and trying Colistin IVs, partly to give myself a break from the constant Tobra I was probably subjecting my leftover hearing to, and b/c I thought that trying something different would have a more powerful effect than my usual IVs. And it did, even with the side effects). Within two minutes, my Dr had written up the prescription for HTS, and also for Cipro (Boo!) as I really shouldn't be coughing like this only 4 weeks after IVs.
When I tried the HTS on Wednesday night, I started coughing immediately, which I suppose is a positive thing -it's working fast. Then on Thursday night I used it again. Again I started coughing straight away and I shifted a fair amount of stuff that would have otherwise been festering around in my lungs for god knows how long. So from now on, my evenings look a bit like this:
- Hypertonic Saline in eFlow neb, takes just over 5 minutes
- Physio (PEP mask, mixed feelings about that damn thing) takes minimum of 20 minutes
- Colomycin or TOBI nebs in eFlow (alternate months) takes just over 5 minutes
- Inhaler x2 (I hate the damn thing. It does nothing!)
When I went to clinic on Wednesday, I had no idea if I'd get higher or lower numbers for my PFTs. I gained weight, which was good (0.6 kg, although I hoped I'd gained more than that at the rate I've been eating) but when I did my PFTs, even though I'd done twice as much physio that morning and my chest felt much clearer having done that, the best I got was 1.95L (63%) for my FVC and 1.75L (66%) for my FEV1. Whilst that is a mere 1% drop, I'm pissed b/c these numbers are lower after IVs, than the numbers I blew last time, right before I started IVs (I hadn't had IVs for about 3 months I think). Whilst I finished my IVs four weeks ago, I had been hoping for an increase.
Guess you can't have everything.