Or at least attempting to.
I don't know if it's cause of the weather or cos my shit excuse for lungs start having a tantrum two weeks after finishing IVs because they're blatant IV drug addicts.
Basically, the crack is that I keep getting out of breath. Doing nothing. It'd be understandable if it was after walking for ages or after a huge coughing fit etc (Which happens anyway) but my god, this is really pissing me off. I can just be sitting watching tv and all of a sudden I'm out of breath and can't slow down my breathing or take a deep breath at all. It's so bloody annoying as I was hoping these IVs would have lasted me till at least christmas. I'm already coughing all night and waking everyone up again, and there's nothing I can do about it. I've got a clinic appointment on the 21st so I don't know what they'll say then. I don't want IVs over xmas, and I can't take Cipro as it doesn't seem to do much, and also destroys my appetite so I literally don't eat the equivalent of one meal a day cos it's that bad. I'm on tobi nebs this month so I'm hoping that might help some. Not that I actually notice any difference when doing my nebs, but I'd rather not notice a difference rather than not do them and potentially feel worse.
It's still fucking stupid.
I'm obviously in a right grump about this but I think it's justifiable to be pissed off about feeling shite when you've literally just finished IVs.
Blah nothing else to say except to bitch about my lungs. I'm sure if I could get out and do more walking it would help, but its minus degrees outside, icy, and even wearing a massive hoody, coat, gloves and the like still don't fend off the freezing temps. So I'd rather not add either a chest infection or a cold to the joy that's happening so far.
Hopefully this will go away on its own (and cos of nebs, physio and whining about it daily) and if I don't get off my arse to post again before xmas, hope everyone has a good holiday spending time with their friends/family/various cats
This year has been weird. I haven't done anything. Haven't achieved anything. Some time at the beginning of the year these days, I w...
So today was World mental health day. It seems a shame that so many people only feel able to speak out about mental health on one day of the...
Hemos. Nearly everyone with CF has probably been there at some point. Its just one of those 'things' that comes hand in hand with sh...
I find it annoying I only ever blog when something like an admission happens, and even more annoyingly, thats why I'm blogging this ti...