Wednesday, 7 October 2009

T-minus 7 days...

I haven't done much other than vegetate in front of my laptop watching the DVDs I ordered the other day. They arrived the other morning when the post man sauntered up to the door, and I saw my two parcels literally fly through the letterbox. And then bounce along on the floor a bit too. I did actually say to the door/postman 'Dude! My DVDs!' But I don't think he gave a shit, and they were safely encased in the cases and the cardboard, so they survived to tell the tale.

And my bus pass came found it's way home :) It must have dropped out of my pocket at school on Thurs, as the school posted it back to me and it arrived on Monday. I was going spare without it. But now I can make any random and pointless trip to Newcastle or Consett or wherever the mood strikes, as I can now yet again, travel on the bus for FREE!! (From 9.30am to 11pm on a weekday, but whenever I like on a weekend!)

My three weeks of IVs are looming ever closer. I don't know whether I'm apprehensive about them (given the fact that they're the 2nd three weeks of IVs I've ever had) or excited. I can't explain the excited thing, but I think it's b/c I'm not feeling crappy right now, so I'm hoping these IVs put me on-top-of-the-world kind of 'feeling great'. That, and they get rid of my cough, which is the main reason for going on them. The highly ironic thing is that I'm going to a party yet again with IVs. My sister's Halloween party, but a party nonetheless. And I know and like people who are going to it, so it'll be fun. But the stupid thing is that I'm yet again on IVs when this party is planned for, and I don't get out much these days. Such is my life. But I'm betting my liver is glad that I'm being very teetotal at the moment. Not so much out of choice, but the few times I do go out and have the opportunity to have a drink, I'm on effing antibiotics. They seem to love me in that way.

I did go to the Freeman ENT on Tues as per my appointment and to be honest, it probably wasn't the best. Every time I go there, I have to take another hearing test and I hate doing them. Its hard to distinguish between the beeps from the test and the ringing in my ears, so its probably not the most 'sure thing' test. This time, apparently I have literally no hearing for the most half. Which confuses me as right now I can hear the TV and hear myself tapping on the keyboard. Albeit with hearing aids, but still, if you've got no hearing, no amount of HAs are going to help that. I did ask if there was anything they could do about the nerve damage - she said my only options are HAs or a cochlea implant, which I put my foot down against. I know some people like them but I just do not want a brick sticking out the side of my head. That, and the fact that surgery is kinda frowned upon with CFers - anaesthetic is nobodies friend, but it can cause major havoc in the lung department when you have a respiratory illness.

My attempt at getting newer or smaller HAs also bombed - she just doesn't see the point as she doesn't believe they will help. Which pisses me off as surely newer HAs (which aren't the size of bricks) would have better technology, right? (See previous post about how they said these HAs would make everything clearer, and they didn't...!). *Sigh* I hate my hearing, I've given up on it. And I'm sick and tired of getting pissed off, embarrassed or upset about it.

On a much happier, chipper and all around better note, I got an extra lens for my camera. When I bought the camera I got a few money off vouchers for other stuff, and I decided to get a 55-200mm lens. It cost a fair bit, but it comes from my grant, and I got £90 off it, so I thought I may as well go for it - whilst I probably won't need the lens this second, the voucher was only valid for 3 months. Now my camera bag really does look the part - I've got the camera, two lenses, a flash gun, a battery charger (ooh yes, I need to buy a spare battery) a spare memory card, and the USB lead. I've also kept the instructions and things in case I get a bit lost (which is fairly likely, knowing me). With the boxes for my camera and lens, and the box for my brand new laptop I bought myself (adding together my wages and left over money from the grant) my room is starting to look a bit like the store room for an electrical goods shop.

Also, you'd think after a whole lifetime of having to take enzymes every time I eat something, that they would be something I always have on me, whether it be in the car, in my pocket or in my bag. Um, no. On Tuesday, before we went to the ENT, I had a cheese and onion bake thing from Greggs. After finishing it and cracking open my coke, I rooted through my bag and started to look for my enzymes. After I couldn't find them, I looked up and said to my Dad, 'Do you want to know something really funny...' and he guessed I'd forgotten my enzymes. Its funny b/c he asked before we left the house if I had some, and I said I did. I was sure I did but I must have taken them out of my bag rather than put them in. I've said about 100 times we need to keep some enzymes in the car or something, as I'm always forgetting them when we go out and I eat something. We still haven't put any in the car though. Personally, I think we're just a family of procrastinators *looks pointedly at the list of 'things to do' which include getting my e-flow serviced and getting my DLA switched over to me now that I'm 18*

Oh and before I forget, b/c I find this funny, I was on the bus today, and it was one of those old and pretty much 'had it' busses, that are loud and shake the seats. I was in the back so my seat had a fair bit of shakin' and I instantly had a thought... 'Hey, free physio!' Heh. Not that I'm charged for physio b/c that would be barbaric but I found it funny all the same.

It's officially one week until my three weeks of IVs. Why, please tell, am I bricking it?!

1 comment:

Lucie said...

Hey there,

I came across your blog through the CF forum...and its so good to find sombody my age (AND from the UK!) that also has CF!

Id love to keep intouch with you if you are interested!

Much love,
Lucie x


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