Showing posts from July, 2010

Everyone's sick.

And I feel helpless. Unfortunately there's no magic fix, so all I can do is ask everyone to please feel the fuck better. And hope that helps.


I'm bored. Obviously.

On Tues I went to see Toy Story 3, in 3D, with subs, with my younger sis. It was a good movie, I loved it. Even worth the 11 year wait. And I'm not a patient person. Here's me and my sis being oh-so-cool in our 3D glasses

Sorry for the shitty quality of the picture. Darkness & mobiles don't make the *best* of photos. Good popcorn too. You can never beat cinema style.

I had a driving lesson the other morning at 10am. Which, by the by, is the earliest I'll ever agree to. Thankfully my next one isn't till 1.15pm. Anyway, I officially love driving. Even if I still suck at junctions and stall like a bitch. But everyone tells me that they're the same and you eventually get the hang of it. And randomly stalling at junctions becomes a thing of the past. Which is good, cos everyone who dri…

Fading away.

Not literally. And not in a whole dramatic sense. More or less, just feeling like I'm drifting away from other people. I know its inevitable but some of these people you thought you'd be close with, talk all the time, forever, cos there isn't something just like a job, a place or school tying you together. It's not their fault. I can't blame people for being too busy or whatever it is taking up their time. And I'm guilty myself for not really making an effort b/c I get it into my head that they're not exactly bothered themselves so I just let it be.

Ok, pity party over. I even annoy myself.

I've got a new addiction. These:

They're yum. To be honest, I think 'yum' is an understatement and kinda insulting b/c they're WAY more than that. And it's totally worth trekking up to Nero's just for one.

Clinic on Friday was normal. Actually it was pretty good. I don't mind clinic when there's fit porters, fit lung function techs, an…


I've been designing posters and tickets for Tori, as she's planning a Masquerade ball in October, for Live Life then Give Life. I like messing about in photoshop and have sooooo little to do these days, so I happily took on the challenge. Even if half the time I was a bit inspiration less and considered just telling Tori to use one of these photos of me being a retard, but essentially still showing all the important info...

A little bit of google snooping solved the problem though. That, and googling completely pointless things which has sort of become an addiction. Although I do think I've reached the height of boredom when I start searching 'weird things on google earth' b/c that's a bit of a wild card and you're probably gonna come up with some *pretty* bizarre stuff.

I'm going to see Toy Story 3 as soon as I can find a subbed screening in Newcastle. I'm taking my little sister and she's already planning on a ridiculous amount of popcorn that…

Exhibition and other happenings.

Latest driving obstacle is stalling. Joy(!) I know that's normal but it happens so damn much! My driving lesson today was good though. I drove through an industrial estate and on to actual road (and probably pissed people off with the amount they were overtaking me) b/c my instructor was talking me through turns and junctions. I had a two hour lesson so got through a lot, managed to reverse a few times without even crashing into the cars behind, so I consider that a bonus. The only major problem I have is that b/c I'm fun sized, the seat belt still cuts into my neck even when it's adjusted as low as possible. It sort of rubs on the line from my port and that's getting so annoying. I really want this port to actually last a long time, but if I ever need another one, I'll probably ask for it to be on the left side. I think they're generally on the left side anyway, at least upper chest ports in adults, cos you do have to think practically if the thing is gonna be…

Warning to the world - I'm learning to drive.

Seriously, people should take cover. I mean, yeah, I've had one proper lesson. And my instructor was explaining that you shouldn't worry, that every single person feels exactly the same as you sit behind the wheel and turn on the ignition. But I don't think I'm one of those 'totally picking it up instantly and being a natural' type of drivers. For starters, I tend to forget stuff.

Like actually taking your foot off the clutch when you start moving.

My first attempt at driving in my Dad's car down an empty road was doomed from the start considering I switched the window wipers on whilst turning the keys. Well, actually it wasn't that bad. I only drove down the road a couple of times and didn't flatten any sheep from the nearby field, so that's a plus.

So yeah, my first proper lesson with an instructor was on Friday. Nerve racking b/c I didn't want to mangle the car, but also cool b/c after basically being legal to learn for 2 years, and actua…

Back on the 10mg train.

And so we're back to our maintenance 10mg of pred. I don't think the 30mg did anything except make me even more hungry than usual. I actually have a stash of food in my room for when I'm absentmindedly hungry and eat stuff to help this weight gain deal. To be honest, I'm kind of just a few appliances short of having an entire kitchen in my room.  I still woke up on Tuesday with my ribs/lungs being even more painful (It's moving about, grr. At least stay in one place so I can have some consistency with temperamental lungs! I never know when/where it's going to hit me next) and b/c I was really short of breath, I checked my sats. 88. Lovely. They're generally about 95 which is good, I can be a completely healthy git and push to 97 on a good day.  So I don't like my 80's numbers.
I duno what I'm bitching about. I probably have it way easier than basically every lung affected-y person I know.  
Er, yeah. That was a pretty shit update. But that's …

Prednisolone burst.


I hate pred. Don't get me wrong, I love that it does it's job. But I hate the side effects, like the insomnia (which I already have, so added with a 5 day pred increase to 30mg- which isn't the end of the world, but is higher than my maintenance 10mg- I'm probably gonna be a sleepless zombie for a few days) plus the potential threat of being all hamster cheeked (which I did when I was 11/12 and will gladly never go through again if I had the option) and the part where I'm ravenously hungry all. the. damn. time. Thats a good thing too. But 3am munchies get annoying. Especially when you're me and you can't be arsed with the effort of actually finding food. Or even worse, if you've already eaten everything the day before and basically theres nothing left short of having a midnight mish to Tesco.

So, why the increase? My lungs are bastards to me. I woke up on Wed morning at stupid o clock with major pain in the top of my right lung whenever I bre…