Showing posts from October, 2009

Spaced out.

I mentioned in the last post that I felt kind of edgy. I didn't like feeling like that and annoyingly I felt like that the next night to, cue people asking me to check my blood sugars. Seriously, if I end up with CFRD I may literally throw a massive tantrum. Anyway, I can't check them as I don't have a blood sugar monitory thing. I've got enough medical crap in the house as it is anyway.

It scared me feeling like that, b/c its just not like me. And it can honestly take a lot to scare me, CF wise. The last time I was most likely shit-scared was probably the whole 'pleurisy nightmare '09'. Which is easily justified b/c I was on the verge of suffocating at one point. And before that it was when my lung function had taken a 15-20% drop (luckily, after that I managed to increase the 55% all the way back up to 80+% on more than one occasion).

I hated feeling lost like that though. And both times it happened I was on my own and the house was quiet, so it sort of int…

Not a hypochondriac, just clumsy.

Majority of IVs done, 4 days to go, and many more injuries acquired since I last blogged.

I am a walking injury.

Only I can manage to practically skin my knuckle when replacing an attachment of the hoover. And b/c of the fun-ness of IVs mean that you have to use heparin after each dose (the stuff that stops clots forming in the line/port/whatever) I bled for ages afterwards. B/c I'm a clear winner. Plus I almost chopped another finger off as I was designated the fun task of smashing melted candles to bits to remove them from the stupidly shaped vase they were in. When will people learn that I can practically render myself A+E bound with even the simplest tasks, so handing me a knife and a load of vases with melted candles stuck inside, is hardly the smartest thing for me to do.

As for IVs, this might actually be the fasted two week dose ever. It could be b/c since my last dose and before this one started, I was remembering what it was like to have a line in my hand or wrist, and I re…

It's a spatula thing.

Ok, so good news... Hopefully these IVs will actually just be for my usual 2 weeks rather than the 3 weeks, b/c at clinic I gained weight (as usual. Not as in put on a whole tonne, but gained a respectable amount, which I'm getting good at these days) and my PFTs are stable. I'm slightly worried that these 'stable' PFTs are staying in the mid-60's when I've had them in the 70's and 80's in the past year.

Hmm. But I'm still hell bent on improving them. My physio suggested I start swimming, which I'm going to. Unfortunately I have the craving to go swimming now, and with a port needle in, that's sort of out of the question. But the second I get it out, I'll hop on the bus and make a (probably knackering) walk to the pools. She suggested it as swimming is 'brilliant' for your lungs, and I admittedly haven't been in a while. I used to swim every Friday night, and now it's more or less just swimming in the pool when we go on ho…

T-minus 7 days...

I haven't done much other than vegetate in front of my laptop watching the DVDs I ordered the other day. They arrived the other morning when the post man sauntered up to the door, and I saw my two parcels literally fly through the letterbox. And then bounce along on the floor a bit too. I did actually say to the door/postman 'Dude! My DVDs!' But I don't think he gave a shit, and they were safely encased in the cases and the cardboard, so they survived to tell the tale.

And my bus pass came found it's way home :) It must have dropped out of my pocket at school on Thurs, as the school posted it back to me and it arrived on Monday. I was going spare without it. But now I can make any random and pointless trip to Newcastle or Consett or wherever the mood strikes, as I can now yet again, travel on the bus for FREE!! (From 9.30am to 11pm on a weekday, but whenever I like on a weekend!)

My three weeks of IVs are looming ever closer. I don't know whether I'm apprehen…

And no word of a lie.

At my shift at work on Friday, I ended the day with more injuries than I bargained for. Not that I actually expect to get injuries from hoovering and the like, but I can't honestly say I expected to come home limping and with a massive bruise on my head.

The bruise was from accidentally whacking my head off the corner of the sofa (which isn't soft). When I stood up I realised I was dizzy - and laughed at the fact that I've probably given myself concussion, b/c it's apparently just that funny. After that, probably only 10 minutes later, I walked into a fence (Ok, fell over it when trying to jump the little bugger) and now I have an impressive bruise on my right leg, thus, limping. And I know its painful as A, it's my leg, and my bruise, and B, I rarely ever bruise. I'm constantly walking into things, whacking my head off open cupboards and alternating between falling up and down the stairs, and rarely have a scratch to tell my tales of clumsy-ness.

But injuries as…