Posts

Showing posts from May, 2009

Ode to a steriod.

I've been put on a course of prednisolone. And all I can think about is the last time I was on it (albeit a much higher dose for a much longer period of time) my face puffed up and I looked like some sort of hamster with a big fat potato stuffed in each cheek. I looked through the instructions of the pred as I've never had the chance to before (as last time I was on pred was when I was 11/12 years old) and even though the side effects section includes quite an impressive list (including 'hairiness'. And I'm not lying about that either. I saw it in black and white print) I still focused on the one that said 'puffiness of the face'.

This dose of prednisolone is 20mg (four 5mg tablets) once a day for two weeks, then down to 15mg a day for two weeks, then 10 mg for "thereafter" which is the doctor's code for 'God knows how long.' I knew that he'd suggest pred. I was actually thinking of it days before the appointment today, and I speci…

London, baby!

Yesss! I heard from Make-a-Wish on Saturday morning, and they said that they've agreed that I can do my first wish - to go shopping and see the sights in London. I'm quite excited, as you can imagine, but I've no idea what exactly is happening, or when. All I know is this:

I'M GOING TO LONDON!

Yeah, I'm one of those sad people who has never really travelled round England, yet alone abroad. I've been to various places in Scotland and Cornwall and a few places in Ireland, but London will (mainly) be for the shops. Oh yes. We also discussed things like going on the London Eye, which I immediately thought 'Ohh, good photo op!', and they also suggested seeing a show, although I said I'd rather not, as there's no point in spending money on seeing a show if I'm not going to understand them. I've been in many a dance show myself, due to the fact that I spent about 8 years learning Ballet, Tap, Modern and Jazz, and I was in a production of 'A…

Dear lungs, I hate you.

My lungs are disgusting little creatures. Yesterday, whilst I was innocently minding my own business and watching some crap on TV, my lungs were crackling. And I don't mean the kind of crackling that a doctor hears over a stethoscope. This must have been in between my lungs and skin, as you could feel it when you put your hand on my side. Disgusting. To make matters worse, it wasn't comfortable, and this got worse when it felt like there were air bubble trapped under my skin (well, that's what it felt like in the moment) and when one of these things felt like they had popped, OhMyGod did it hurt. I couldn't stand the rattling and did every type of physio I know in an effort to shift it - PEP mask, Acapella, CPT, breathing physio, and just a good old huff. But nope, nothing worked, and I discovered that 3 weeks of IVs have actually made it harder to get the stuff up as I'm not coughing much.

It finally went away on its own, and I was left confused and trying to expl…

Like clockwork.

Pleurisy is an evil little bastard. I thought it had gone, at least to some extent - its still sometimes painful at the base of my [right] lung when I breath quite deeply, or hiccup. BUT... for the past two mornings, I have woken up at 5am in mega pain, quite like what I experienced on that fateful Thursday, and it pretty much follows the same routine, to the point of thinking that pleurisy runs on a script when it feels like kicking up a fuss, which involves waking up in pain around 5/6am and realising that I've still got till 7am till I have to be up for school so I can *attempt* to sleep through the agony cos I'm far too tired to attempt to reach for any painkillers.

Its plotting something. It just has to be. I have a feeling it may have something to do with the fact that I managed to finish all my coursework, hand it in, finish my final [exam] art piece and get started on my art display for the art corridor (All 6th form art students are given a section of wall to display …